Genomic data sharing in Europe is stumbling—Could a code of conduct prevent its fall?
نویسندگان
چکیده
منابع مشابه
A better Code of Conduct.
I November 2004, Canada’s Research-Based Pharmaceutical Companies (Rx&D) made substantial changes to the industry’s Code of Conduct. Although these changes might not have pleased both the medical and pharmaceutical communities, they were necessary. The original Code of Conduct was first introduced in 1988 and reflected the approach to and expectations of relationships between industry and the m...
متن کاملGenomic medicine and data sharing
Introduction Effective data sharing does not occur in the UK despite being essential for the delivery of high-quality genomic services to patients across clinical specialities and to optimize advances in genomic medicine. Sources of data Original papers, reviews, guidelines, policy papers and web-resources. Areas of agreement Data sharing for genomic medicine requires appropriate infrastruc...
متن کاملSharing is About Caring? Motivating and Discouraging Factors in Sharing Individual Genomic Data
Reasons for individuals to (not) share their genomic data with human genomic research remain largely unexplored. We employ privacy calculus as our theoretical lens and conduct a ranking-type Delphi study among genomic data donors, genomics professionals, and health privacy experts to elicit 19 motivating and 17 discouraging factors that influence individuals’ willingness to donate their genomic...
متن کاملOpen Access Data Sharing in Genomic Research
The current emphasis on broad sharing of human genomic data generated in research in order to maximize utility and public benefit is a significant legacy of the Human Genome Project. Concerns about privacy and discrimination have led to policy responses that restrict access to genomic data as the means for protecting research participants. Our research and experience show, however, that a consi...
متن کاملa study of relationship between knowledge sharing and organizational agility among personnel in esfahan power electric distribution company
پژوهش حاضر به بررسی رابطه بین تسهیم دانش و چابکی سازمانی در شرکت توزیع برق استان اصفهان پرداخته است . ابزار سنجش در این پژوهش پرسشنامه می باشد . به منظور سنجش متغیر تسهیم دانش از پرسشنامه وانگ و وانگ و جهت سنجش چابکی سازمانی از پرسشنامه چاربونیر استفاده شده است . هدف پژوهش حاضر تحلیل رابطه میان تسهیم دانش و چابکی سازمانی از دید کارکنان شرکت توزیع برق استان اصفهان می باشد . جامعه آماری این پژوه...
15 صفحه اولذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
ژورنال
عنوان ژورنال: EMBO Molecular Medicine
سال: 2020
ISSN: 1757-4676,1757-4684
DOI: 10.15252/emmm.201911421